Building & Strenghting the family... one day at a time!

Saturday, December 5, 2009

Update on Ashton and a recent Picture

I made a post on CarePages but I hear rumor that it has been too long and not everyone remembers how to log into that. To tell you the truth I couldn't either. I had to try several username and password combinations.

Ashton is doing really good. We last met with his cardiologist a couple of months ago and he felt confident that we could go another year and maybe a little longer before his next surgery. He has had good health, only getting real sick twice over the last year and we didn't have a hospital stay with either of those that I recall. He is off oxygen most of the time and his sats are staying in the low 80's on room air and that is really good for him. We will go to surgery when we can't keep him in the 70's even on oxygen, so we are happy that he has been feeling so good. Sometimes it is hard to remember that he has anything wrong with him.

We got some exciting news! Make A Wish is sending our family to Disney World in February. We have heard stories about other families who have gone and can't wait to take a break and have some fun as a family.

This picture was taken about a week ago and yes he really is that cute in person:-)

I hope everyone has a great holiday season.
Take Care,

Thursday, November 12, 2009

I guess I should update since its been a year

Ashton has been doing so good. Our last cardiology appointment was a couple of months ago and his doc. said he looked good. We are hoping we can go a year or two before having the Fontain surgery. As many of you may already know, there are those who's chest fills with fluid with these surgery's and those who don't and Ashton is one who does, so we will put it off as long as we can. For now he is growing and keeping up with his brothers.

I guess one thing we are working on is speech. He has a therapist who comes once a week and he has recently started going to school once a week to a speech class also where he gets to play with other kids and he loves it.

His big sister has so many pictures of Ashton but she has a car now so I've got to catch her and keep her home long enough to get some pictures transferred to the computer.

Something exciting happened yesterday. We got a call from Make A Wish Foundation and they are processing the paperwork for Ashton to get a wish. She told me it takes about 6 months to get through the process; so we are excited for that.

I'm sorry I haven't kept up with everyone much. I once heard someone say that no news is good news. Ashton is doing so good! With him being so healthy, we are getting back involved with NAMI (National Alliance on Mental Illness). I received a diagnosis of Bipolar before Ashton was born but I have been stable for a few years, but our oldest son was diagnosed Bipolar also so we are learning about resources to help him for now.

Shanna and I appreciate all of you. Although we haven't made any posts, there are many of you we have talked to face to face over the past year. Your love and support has given us strength and we are grateful for your thoughts and prayers; they seem to be working so far.