Well this has been an interesting last few days. Ashton’s sats dropped considerably starting last Wednesday; this raised enough concern that he spent Thursday and Friday in the hospital in
Ashton and Dad made the trip this morning to his scheduled appointment with his cardiologist at PCMC. For the most part, Ashton was like a new man this morning. We were told that his lungs look good and have improved since his last appointment a couple of months ago (not so wet). Something that I learned about was white blood cell count. I thought that when he was sick that he should have a high count, but when he was in the hospital last week, his white cell count looked good. The cardiologist told me today that when he has a virus it is somewhat more reassuring when his white blood cell count is not elevated as this reflects that it most likely is a virus; whereas a high count can reflect something bacterial.
I learned a lot today….more than I can take time to post, but for a dad who is always concerned, I continue to better understand the process of Ashton’s condition and what can be expected through illness. I think it goes something like…I panic and the doctor’s reassure me that it is normal and then I panic some more.
I am so tired from lack of sleep and the horrible driving conditions through the Malad pass this morning. I ended up coming to a dead stop on the freeway and then inching off the shoulder…listening for the sound of the tires going over the rough part that they put on the side of the road to wake people up when they start to go off the road. I was glad to see the car behind me come to a stop also. We took it slow and made it in one piece.
This has been a good day. Ashton has been so cute playing here in the hotel tonight. He was playing by the closet doors that are mirrored and thought he was pretty funny. He was right…he was pretty funny!I want to thank those of you who donated to Intermount Healing Hearts, per my request. Know that this is helping get things going. The organization has received an official status as an organization who is registered in Utah. They now have an 800 number and P.O. Box and they are currently awaiting approval of a 501 (c)3, non-profit status . The website is being developed and more families are joining daily. This organization is so important for families. I know from those I have talked with, we all appreciate all the support we receive, but it is nice to be able to talk to someone who can relate with our situation 100% and IHH makes this possible. It is important for the parents and the CHD child, but summer camp is also scheduled and will host activities for the other siblings in the family. They also need someone who can relate to them and the difficulty they face by getting placed on the back burner at times.